Age: 43

Occupation: Graphic / Web Designer, Smart Ass

Injury: C 3-4 Incomplete Quadriplegic

Special Features:

  • Neck Full of Metal
  • 2 Bellybuttons
  • No Pain Below the Shoulders
  • Scars

How I Use The Computer

Many people ask me how I type and use my computer. I have a 20″ iMac set on a hospital bed table so I can just lay in bed and do everything. Instead of a mouse I use a device called a SmartNav to control the cursor and a sip and puff tube to right and left click. I put the reflective sticker on glasses with no lenses so I don’t have to stick it on my forehead each time. The only other thing needed is my onscreen keyboard.

I have a bundle of Adobe CS6 graphic design programs to mess with. For vector graphics I use Illustrator, to manipulate photographs Photoshop, web site design Dreamweaver, animation Flash, Premeire Pro & After Effects for editing video, and more. I have a device called a Slingbox on my TV which works wireless so that I’m able to watch TV and control my DVR on my computer. I have a built-in webcam, Skype, and my own phone number to my computer. Technology is GREAT.

My Injury

My 1996 KX 250I injured my spinal cord while riding my dirt bike (’96 Kawasaki KX 250) in 1998 leaving me a quadriplegic. I don’t have the control of anything below my shoulders but I do have pressure sensation everywhere on my body. On July 21, 1998 I had the day planned for my buddy and me to go to a track in Pahrump, NV for their practice session and come home and help Aldo with his pressure washing business. If I remember correctly I also made an awesome batch of homemade spaghetti sauce. I remember my buddy Jash was driving my truck and we got pulled over for speeding on the way to the track. I told the officer that the oversized tires must be throwing off the speedometer, he was cool about it.

When we got to the track all I remember was having a great time. At the track there was a pyramid style jump I hit and can’t tell you anymore about my crash because I don’t remember and no one else saw that I talked to later. At some point I died for 66 seconds. I remember hearing somebody telling me to walk towards the light, ha ha, yeah right. They asked me to squeeze their hand, then I was out again. Then I regained consciousness long enough to hear that I was in a helicopter and a lady told me to keep breathing but I became unconscious again.

Some things will be a little out of order because morphine and Demerol played a big part in my hospital stay. In the hospital I remember my friend standing at my bedside and I kept shrugging my shoulders mouthing I can’t move. No words could be heard cause I wasn’t able to talk because my injury was so high on the spinal cord that it knocked out the use of my diaphragm. To communicate somebody would hold a board with the alphabet on it, point to a line and I would blink my eyes when they got to the correct row, then they would slide their finger across the line and I’d blink again when they got to the correct letter. It was a pain in the ass. Some were good at reading lips. I don’t know when my family that live in California or my girlfriend who was visiting people in California got there but I was told that they should hurry cause I might not live. I was in traction which meant I had weights that were pulling on my neck taking pressure off the vertebrae, I had tubes down my throat giving me air, a tube in my stomach giving me Ensure drinks, and laid around with a towel over my pecker cause I always had a fever, I tell ya, GOOD TIMES!

spinal cord mapMy first vertebra which is C1 was fractured, and C3 and C4 were subluxated, basically vertebrae shifted sideways and pinched my spinal cord, (click on picture to view the spinal cord map). They took bone from the front and back of my pelvic bone to fuse my C3, C4 vertebras together from the front and back of my neck. They even gave me some screws to hold the bones in place. That little surgery cost $770,000, and the bill for it was given to us as fast as they could print it up. Because I fractured my first vertebra they screwed a big piece of metal to my head called a halo.(click on picture) It has six screws tightened to 9pds of pressure and kept my head and body from being able to move separately. halo, g-tube, ventilatorI now have 6 scars around my head from where the halo was screwed. I think the next big thing was my tracheotomy which is where they put a hole in your neck and attach a tube which is then connected to a breathing machine called a ventilator. Now the tubes are out of my mouth but like I said earlier I still can’t talk because my injury was so high on the spinal cord that it knocked out the use of my diaphragm.

The first month at UMC Las Vegas consisted of pain meds, range of motion, bed baths which suck compared to a warm shower, and a little rehab. I also remember family and friends coming to see me. A lot of people sent cards and their best wishes and I hadn’t realized how much I took for granted till all this happened.

After a month they kicked me out of UMC so I was off to Rancho Los Amigos in Downey, Ca. My dad and I flew in a small jet plane but don’t remember thanks to my buddy Demerol. Rancho is known for their great rehab center for spinal cord injuries but I have my own opinion. When I got there they removed my halo and put on a neck brace. I believe I was still in the urgent care part of the hospital. While there they had me try to get use to sitting up in a wheelchair and that’s all I remember. After they moved me to the rehab floor it got real boring. My days consisted of blood work, range of motion, x-rays, very little physical therapy, sitting in a wheelchair, watching TV, and bitching about pain.

My family and girlfriend’s family were there doing whatever they could to help. I must give my ex-girlfriend much thanks, she was great. She slept on a cot next to me for the 2 months I was there. She learned how to do everything to take care of me. Like cleaning my neck hole, suctioning the fluids out of my lungs, sticking her fingers in my ass to pull my shit out, sticking a tube up my pecker to drain my bladder, and so much more, that’s love. Amber, I love and appreciate everything you sacrificed and did for me, I will never forget.

Not to long after getting to Rancho they put this little valve on my trach called a Passy-Muir valve which allowed me to talk. It was great being able to communicate with my voice again. Dr. Passy who helped design the piece was at Rancho Los Amigos so I was able to thank him personally. For 2 months it was much of the same thing day after day.

Sean Kelley - quadriplegic floating in the poolThe doctors said a lot of negative things, one was that I’d never breath on my own. Towards the end of my stay I asked my dad to turn the vent off because I felt I could breathe on my own, so he did. I stayed off for 45 minutes before they came in and found out what we were doing. They got mad but it opened their eyes and they started weaning me off the vent. I also had to learn how to eat again making sure nothing was being inhaled into my lungs. That wasn’t a big deal but it had to be done. I started out with vanilla ice cream with blue food coloring, then moved on to other soft foods dyed blue, and blue liquids. After each blue food session they would stick the suction tube down my trach into my lungs to make sure nothing was going down that way, thankfully never had a problem with that. My first real food test was Pizza Hut with no blue. TASTE, what a great sense.

A couple of weeks before I was released they asked me if I would go out and interact with society, so I did. Another guy and I chose to go to the Long Beach Aquarium. People would stare, kids would ask their parents what was wrong with me but I expected that. I had/have no problem talking to anyone that has questions, so ask. A couple of days before I was released my girlfriend and family stayed in an apartment at the hospital to see if they were ready to take care of me at home in Henderson.

When I was out of Rancho it was back on the little plane home. When I got there I think everything was ready for me in the downstairs room. I had to have a respiratory therapist come see me daily to make sure I was ok and getting enough oxygen. a little taste of what it's like to be paralyzedNot long after I got home a physical and occupational therapist would work on me 3 days a week. I was very optimistic and worked hard to try to improve my broken body. At this point the stomach tube was out but I still had the ventilator and oxygen which sucked but my diaphram was getting stonger so I was able to breathe on my own longer. Seven month later I would get the trach out of my neck. I was able to take breaths through my neck with my mouth closed, it was crazy. The hole sealed up quick. I am so thankful for getting off of the vent and will never take breathing for grated. TO BE CONTINUED…….

Present Day Life

As of now I still don’t have motor function of anything below my shoulders but I haven’t given up. You can see me driving my chair around with a chin controller. I spend most of my time with my buddy Shawn who I’ve know since we were 16. Five days a week Shawn is my caregiver. I watch a lot of movies, go to concerts, supercross/motocross races, mess around on the computer, chess, Xbox 360 (MX vs ATV, Dirt, GRID) and I love to sit out in the warm sun. When the weather is good (75º to 85º) I like to roll around the neighborhood or to the nearby park with Brodie.

Motivated Again

This year I’ve been motivated to regain anything since my spinal cord injury in 1998 and get my body in better condition as far as blood circulation, strength in muscles I know work hopefully leading to other muscles kicking in, and range of motion. It’s been a tough start with so many transportation problems but that seems to all be figured out now. Of course I could be doing some exercises at home but lack in following through with it here. When I’m laying in bed doing nothing I try to get a little pumped up by tightening my muscles in shoulders, chest, biceps, triceps, forearm, and everything to the tips of my fingers. Sometimes it seems to work but I know I can do more.

Strengthening my breathing is another area I’d like to work on. Those that know me know my diaphragm is not very strong making it near impossible to sneeze which isn’t a big deal and COUGH which is a concern. When I have an ordinary cold and my lungs get fluids in them I’m unable to cough without assistance. I need a push on my diaphragm, kinda like the Heimlich maneuver. When I can’t keep my lungs dry I usually end up with pneumonia which can be a killer and a shitty feeling in general. So building up my diaphragm would be a huge plus in getting more oxygen into my body making it possible to COUGH on my own. In my pre-injury days I could get a huge green lugi out of my lungs with little effort.